The Neuro foundation
The Neuro Foundation provides crucial support and empowerment and for those affected by Neurofibromatosis in the UK.
Neurofibromatosis is not limited to one group of people. Regardless of gender, age, ethnicity, sexuality, disability or wealth – Neurofibromatosis, if not catered for appropriately, can cause intense grief and isolation.
The Neuro Foundation works directly with families, funding The Neuro Foundation Specialist Advisor network, a small group of hospital-based professionals. The charity also produces written information in a series of factsheets for families and professionals.
Visit their website for more information.